Friday, October 16, 2015

Passion? What does that mean?

Passion is just another word for emotional. My work mama, Pammy, taught me that. So what do you get passionate about? When I was younger I was passionate about sports, especially my Denver Broncos and New York Yankees. In fact, there was a time when the Broncos lost the Superbowl. Which time, you ask? Well, I was around when the Redskins, Giants, 49er's, and most recently the Seahawks beat down my Broncos. In fact I was so emoti..er...passionate about my Broncos that I cried when the 49er's beat the Broncos 55-10 in 1990. Yes. I cried like someone stole my candy. But times have changed. The older I get the more I have realized that I am not the one getting paid millions for dollars to play the game, so why get so wrapped up in a win or loss? Amazing. I never thought those words would come out of my mouth.

I am passionate about about the beach, Margaritaville, and margaritas. I grew up in the Norfolk/Va. Beach area. Since I have now lived in the South longer than my school years in Virginia, I consider myself a Texan. Plus, I worked so hard to get to Texas, my babies are Texans, and I love everything about Texas, that I can not imagine calling any other place home. But my heart is still at the beach. My main goal is to get Miriam and I back to the beach permanently. But first, I have work to do. Oh, I failed to mention that getting back to the beach does not mean Va. Beach or points north. I mean possibly the Gulf Shores area, but who knows. Everyone needs a goal.

I am passionate about my relationship with Jesus. I grew up in an abusive home, with an alcoholic dad, a mom who was verbally and at times physically abusive as well. My testimony is not for the faint of heart. There was a time when I contemplated suicide at the age of 17, and I had a loaded gun to my head. But in that moment of darkness, a LIGHT broke through. That light was my Father in Heaven wrapping his arms around me. The next day I drove myself to my church, First Baptist Church of Norfolk and committed my life to Christ and to help those that grew up in an environment like mine or even worse.

I am passionate about my wife and kids. Sure, they can get on my nerves sometimes, but I am 100% certain that they would say the same thing about me getting on their nerves. Even though my dad is dead and my relationship with my mom and extended family is pretty much non-existent, I am blessed to be able to have my own family that I can change the House of Clouse legacy. I also have two sisters that I am slowly trying to repair the relationship with. You see, I became a master of cutting people out of my life. In fact, I am still pretty good at it. Not that that is something to brag about, it's just the ugly truth. Everyday I try to do better. Key word: Try.

I am passionate about raising money for St. Jude. I would like to think of myself as a good friend or at least someone that you could count on to go to battle with. I have friends that lost a grand baby to cancer, and I have friends that lost their baby to cancer. Cancer, in my opinion, sucks just as bad as Multiple Sclerosis, and I want to find a cure for cancer just as much as I want to find a cure for MS.

I am passionate about NATCA. I have said this many times, but I have wanted to be an Air Traffic Controller since I was 12 years old. NATCA allows me to have a voice in working conditions, agreements, and about improving my dream job.

I am passionate about finding a cure for MULTIPLE SCLEROSIS. Let me be honest. I am not the perfect husband, or father, or friend. I am not even the perfect employee. BUT, when I set my mind to something it's either all or nothing. I have my flaws. I have skeletons in the closet. I have those that would love to see me fall and celebrate in my failures. I am not blind. With all of that said, I WILL NOT QUIT! I will find a cure for my wife. I took a vow and in that vow I repeated the words "For in sickness and in health." There are other things I am passionate about such as coffee, bacon, buffalo wings, books, jazz music, tropical music, etc. etc., etc., but I don't want to bore you.

I don't know what you're passionate about, but be a WORLD CHANGER. Find something useful to be passionate about. You know, like joining the MS Society, or collecting clothes for the homeless. Find something that will help people be better. Find that something, latch on to its throat, and don't let go until you win! Are you pumped? Are you ready!!!! Then go, World Changer. Change the world!!

Jimmy


Thursday, October 15, 2015

Multiple Sclerosis awards dinner transcript 15 Oct 15

What does Multiple Sclerosis mean? A quick google search defined multiple sclerosis as:

mul·ti·ple scle·ro·sis
noun
  1. a chronic, typically progressive disease involving damage to the sheaths of nerve cells in the brain and spinal cord, whose symptoms may include numbness, impairment of speech and of muscular coordination, blurred vision, and severe fatigue.

My lovely bride, Miriam, was diagnosed with MS close to Christmas and my birthday in 2007. She had been telling me for months that she had numbness from her waist down. I suggested that she go to the doctor after a few more complaints of numbness, but she decided to stop her birth control. She thought that her new prescription could be the cause of the numbness. She stopped the birth control and the numbness went away, but not for long. By this time I became callous to her complaints of numbness because it was the same old song and dance. Miriam would complain of numbness, I would suggest that she go see a Doctor, and around and around we went. It wasn’t until a Facebook message that Miriam had with her friend that convinced her to go to the Emergency Room. Her friend suggested that Miriam might have a blood clot and off we went to the ER with a 14 month old daughter whom had a fever and double ear infection.

When we arrived at the ER, the nurses began to get to work getting Miriam’s vitals. After Miriam changed into a hospital gown, they whisked her away for an MRI. I was beginning to feel frustrated because I had my daughter in my arms, she was burning up because of her ear infections, and my wife was being sent back for tests which I thought was a complete waste of time and a complete waste of a copay that we struggled to scrape up anyways. When Miriam returned to the room I could tell that she could sense my frustration. However, my frustration quickly turned to disbelief and shock when the Doctor entered the room with the MRI results. He informed us that the MRI showed that Miriam had a lesion on her brain. My first thought was cancer but I had no idea what a legion on the brain meant. The ER doctor told us to make an appointment with a Neurologist after the holidays but still did not tell us what was going on. After convincing the doctor to give me his opinion, he said that he thought Miriam had Multiple Sclerosis. My heart sank. I immediately began to feel guilt because I thought that Miriam was fine and we were wasting our time at the ER. I began to feel sad at the thought of losing my wife. I began to go through an array of emotions. The doctor sent us home with one instruction. Stay. Off. The. Internet. He didn’t want us to Google Multiple Sclerosis. We did anyways.    

After our appointments at the turn of the calendar, and spinal tap, and MRI’s, I knew that I needed to do something. I needed to support my wife. I needed to let her know that I was not going anywhere and that I was going to be by her side until the day that I die. For sickness and in health. So I began to search the internet and landed upon the MS Society’s webpage. There was an MS Walk in Addison and I could participate by walking, raising money, and forming a team. We had a small group for our first MS Walk in 2008. I didn’t raise a lot of money, but I knew that the money that I did raise was going towards a great cause. Year after year I raised money and eventually formed my MS Team, MS Busters which I later changed to Kicking Asphalt. Usually it’s just my family and a few friends that participate in the walk and that’s ok with me. All I really want is their money and I tell them that. I just want to find a cure and I also want to bring awareness to this disease that has changed our lives.

But what does Multiple Sclerosis actually mean? It means that your life has changed. It means doctors appointments and medicines and needles. It means feeling fatigued. It means symptoms and tests. It means MRI’s. It means fighting the negative thoughts that creep into our minds. BUT Multiple Sclerosis also means family. It means togetherness. It means fun. It means MS Walks and MS Dinners. It means not fighting alone. It means shaving my head , painting it orange and wearing an orange tutu. It means that we will not be beat by MS. We will fight. We will bring awareness and We. Will. Win!

The House of Clouse, Team Kicking Asphalt,  isn’t all about rainbows and unicorns. We have had a relapse. We have had days when the Summer heat zaps our energy. Notice that I keep saying “We”, because we are one. Unless we are at the mall of course, then she is on her own. But we have had our struggles. We have had questions.  We have done our homework on which medicines were the best for our needs. We have surrounded ourselves with a solid church family and we have prayed. But most importantly, we have not given up.

I encourage each of you to become a trailblazer. Make the 2015-2016 fundraising year the best you have ever made it. Form a team, become a team captain, become the top fundraising team! Just joking. Be the second top fundraising team because I will continue to push Team Kicking Asphalt to be number 1. Become competitive during this fundraising year, but remember the number one goal is to find a cure. Raise just $100 more than you did in 2015. Invite one more person than you did in 2015.

I will not give up! I ask that you join me in making the 2015-2016 Fundraising year the best. year. ever. Let’s make it a record breaking year for Ft. Worth. I do not know what I will do for this walk. Maybe wear an orange tuxedo, or dye my beard orange. Right now I have no idea. But I promise you that I will not give up. I will continue to fight to find a cure for my wife and for you.

Thank you for all that you do. Thank you to Lily and to the amazing staff and volunteers at the MS Society. Thank you to all who have joined us tonight and thank you to all who have fought beside me to find a cure. We. Will. Win!! We. Will. NOT. Be. Beat.

Goodnight.

Will you be remembered?

You bust your back at work. You sacrifice your time, your energy, you sanity to improve the environment you're in. You work as though you were working until the Lord, just as the Good Book says. But will you be remembered when it is all said and done?

This week I was talking with someone whom I consider a work mentor about this very topic. If you are a member of our great military, a police officer, air traffic controller, fire fighter, or work at a place that is a 24 hour 7 day a week job, will you be remembered when you walk out that door and call it a career? This had me doing some serious thinking. I love my job. It's my dream job and a job that I wanted to do since I was 12 years old. I can't imagine doing anything else. But where am I placing my priorities? The reality of my job, or any job for that matter, is that each and every one of us is replaceable. I don't mean to make it sound so depressing, because it's not meant to be. I just want to draw attention to it. If I got into my car to drive home after work, and God forbid that I get into an accident, will Air Traffic stop? No. Sure I will be missed by my coworkers (I think), and sure it's sad to think about, but I AM REPLACEABLE. 

But wait. I have some good news. You're not replaceable to your family or your friends. You see, I am replaceable at work, but I am not replaceable to those that love me, care for me, and pray for me. So what am I trying to say? I want you to go to work. I want you to work as though you are working until the Lord, BUT I want you to go home and give more to those that are important. I want you to spend time with your family. Invest in your family. Invest in your church. Help those in need. Give to the poor. Make a difference in your community. Don't be forgotten to those that matter most.

My wife and I were discussing my opinion on this topic. I feel the need to say that I DO WANT you to leave a legacy. I want you to be remembered when you retire from your job. But if you're like me, you struggle daily with ranking your priorities. There have been many days in my career when I have put my job first and my family second or even third. All I really want you to do is take time each morning to pray and prioritize what is really important in your life. 

God has sent his one and only Son to die for my sins, and though I am by no means perfect, I don't use that line as an excuse. I strive to be perfect because if we, Believers, say that we should follow the example of Jesus Christ, then why would I not strive to be perfect? Jesus was perfect.

My two cents. Take it for what's it worth,

Regards,
Jimmy

Sunday, October 4, 2015

Back to the basics. My wife said that I should journal but what I really I want to do is eat ice cream.

In this day and age of technology, we forget what writing a letter actually feels like. I recently wrote a letter to friend who moved to the Washington D.C area. I thanked him for all the work he did and what he meant to our team. I got about two paragraphs into my letter and my hand started to cramp up. I dropped my pencil and screamed in pain but I picked that pencil right back up and plowed through the next couple of paragraphs.  I ran to the mailbox, dropped that letter in, and ran back inside to ice my hand. This past week I wrote another letter to a coworker that was retiring. This time I was ready to write that letter. I did a few finger and hand calisthenics and went to town on that letter. It felt good to get back to the basics. In our world of texting, email, and social media, I felt one thing when my friends read their handwritten letter from me...appreciation. They appreciated the time and effort it took to write a letter and it felt good to let them know how important they are. Why do I tell you all of this? Because maybe we need to get back to the basics of life. 

My daughter is rapidly approaching her last year in single digits. She will turn 9 in just a couple of days, and I can not believe how fast time has traveled. It's true what is said, time waits for no man. But what have I been teaching my daughter? I catch myself with my head down, texting, or mindlessly scrolling Facebook, or playing Words with Friends. I have slowly been detoxing myself from doing all of that. When it comes to our kids, more is caught than taught. So what am I teaching my precious daughter and son? Am I teaching them that my iPhone is more important than listening to them? Am I teaching them that sending that text is more important than looking out the window and watching the world with them through their eyes? Isn't it ironic that I am writing a blog on my computer about detoxing? Yes. Yes it is. However, my kids are asleep and Miriam is watching a show on Netflix. Plus I needed to type this out because maybe someone else needs to read this and get back to the basics with me. 

Let us get back to the basics. Let's put the e-reader down and read a book. You don't have to completely get rid of the e-reader, but don't forget what reading a real life book felt like. Write your BFF a letter. Put your phone on DO NOT DISTURB or block a couple of phone numbers. Maybe check Facebook once a day or maybe once every other day. Go watch the sunset (because it would be a miracle for my family to watch the sunrise). I understand how much easier life has become by being plugged in or by texting and emailing from the palm of your hand, but don't..forget..the..basics. Don't forget your family. Don't forget to put the phone down and take a mental picture instead of trying to take a picture to put on Instagram. That is all. 

In Him, 
Jimmy

YOU HYPOCRITE!

hy·poc·ri·sy həˈpäkrəsē/ noun the practice of claiming to have moral standards or beliefs to which one's own behavior do...